Have you or a loved one been diagnosed with a rare epilepsy including: Aicardi Syndrome, CDKL5 Disorder, Dravet Syndrome, Dup15q Syndrome, Hypothalamic Hamartoma, Lennox-Gastaut Syndrome, Ohtahara Syndrome, PCDH19 Female Epilepsy, Phelan-McDermid Syndrome or Tuberous Sclerosis Complex? If so, you are not alone. Though each syndrome is different, patients and caregivers with rare epilepsies share many common seizures types, symptoms, and side effects.
During this webinar you will learn more about rare epilepsies and the serious risks associated with these syndromes, including sudden unexpected death in epilepsy (SUDEP). Discover the important work being done by the Rare Epilepsy Network (REN) to identify better prevention and treatment options and how you can get involved by enrolling in the REN database.
The Epilepsy Foundation SUDEP Institute is a proud partner in the PAME Webinar series.
A $25 donation is suggested. Use coupon code 07PAME at checkout to register for free.
Date: November 6, 2014
Eastern: 3:00 – 4:30 PM
Central: 2:00 – 3:30 PM
Mountain: 1:00 – 2:30 PM
Pacific: 12:00 – 1:30 PM
Jacqueline French, MD
Professor of Neurology, Co-Director of Epilepsy Research and Epilepsy Clinical Trials,
NYU Comprehensive Epilepsy Center
Dale Hesdorffer, PhD, MPH
Professor, Columbia University Medical Center Epidemiology
Janice Buelow, RN, PhD, FAAN
Vice President of Programs and Research, Epilepsy Foundation
Our mailing address is:
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Landover, MD 20785